Introduction by their child (Dehghan et al., 2014).

Introduction

Background
information

Quality of life
(QoL) is an individual’s perception of their position in life in the context of
the culture and value systems in which they live, and in relation to their
aims, expectations, standards and interests and concerns (WHO, 1996). Identifying the factors affecting QOL can
enhance treatment, care, and rehabilitation programs (Soh
et al., 2013). One of the major goals of all countries
is to improve people’s QOL and well-being (Prudente,
Barbosa, & Porto, 2010). QOL is a subjective concept that
encompasses all conditions and aspects of human life (Nesterko,
Braehler, Grande, & Glaesmer, 2013).

 

Taking
care of a child with disability, CP being one among them interferes with other
roles of both parents but the daily life of mothers is often more affected
because they are usually the primary care givers for the child (Sajed et al.,
2009; Raina et al., 2005; Brehaut et al., 2004). As in most cultures around the
world women have more responsibilities in raising children and the primary care
givers of children with disabilities are often mothers (Ones et al., 2010).
though there may be some different cases in our setting where most mothers are
employed and others are doing small scale business, so the children are taken
care by someone else yet the quality of life of mothers of children with CP are
most affected as they are the one who are more responsible for taking care of a
child compared to fathers.

 

When a child has
a disability, most families experience some suffering. Parents may experience
emotional stress, anxiety, fear, and guilt. They may have to readjust their way
of life to accommodate their child, and the problems faced by their child
(Dehghan et al., 2014). Cerebral Palsy (CP) as one of such disabilities which
is defined a s a disorder of movement, tonus, and posture with a pre-, peri-,
or postnatal etiology (Ones et al., 2005). Incidence estimated to ranging from
2.2-3.3/1,000 live births in developed countries (Kakooza et al., 2015) while
those in Africa are less precise with scarcity of information showing wide
ranging figures from 2-10/1,000 live births (Couper, 2009).The most risk
factors for CP are low birth weight, intrauterine infections and multiple
infections (Odding, Roebroeck, &Stam, 2017). Although motor dysfunction is
the defining clinical feature of CP, other features like sensory, cognitive,
learning difficulties and behavioral problems as common consequences can also
be seen (Ones et al., 2005).The consequences of CP may affect the QoL of
mothers of children with CP as they may need full care from their mothers.